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This little Jewish boy’s story shows there is hope for cystic fibrosis sufferers

JL;DR SUMMARY The story of Baker, a young UK boy born with cystic fibrosis (CF), highlights hope for CF sufferers through the transformative drug Kaftrio. A way out west there was a fella, fella I want to tell you about, fella by the name of Jeff Lebowski. At least, that was the handle his lovin' parents gave him, but he never had much use for it himself. This Lebowski, he called himself the Dude. Now, Dude, that's a name no one would self-apply where I come from. But then, there was a lot about the Dude that didn't make a whole lot of sense to me. And a lot about where he lived, likewise. But then again, maybe that's why I found the place s'durned innarestin'.

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Tags

Genetic MutationCystic FibrosisKaftrioBakerEmily Kramer GolinkoffBatsheva KeremW1282xCf ResearchMedical BreakthroughEmily's Entourage

Places mentioned

Loughton, England, United Kingdom
"The pair from Loughton in Essex had to quickly learn to dose him with enzymes and medications, how to use nebulisers and to do daily physiotherapy."
London, United Kingdom
"Doctors at the Royal London Hospital explained that CF is an inherited condition that causes sticky mucus to build up in the lungs and digestive system."
Jerusalem, Israel
"Professor Batsheva Kerem of the Hebrew University in Jerusalem was one of the team that first identified the genetic mutations that cause CF."
Merion Station, Pennsylvania, United States
"2011 along with a group of family and friends, Emily set up a charity based at her home town of Merion Station just outside Philadelphia in the US state Pennsylvania."

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Cairo Item ID 41871
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Retrieved 2025-01-17 05:30:46 UTC
Curated 2025-01-17 08:31:17 UTC