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A Leap into the Lab  

JL;DR SUMMARY This gripping story shares the incredible journey of the Landsman family, who fought tirelessly to get FDA approval for an experimental gene therapy to treat their sons' rare Canavan disease. A way out west there was a fella, fella I want to tell you about, fella by the name of Jeff Lebowski. At least, that was the handle his lovin' parents gave him, but he never had much use for it himself. This Lebowski, he called himself the Dude. Now, Dude, that's a name no one would self-apply where I come from. But then, there was a lot about the Dude that didn't make a whole lot of sense to me. And a lot about where he lived, likewise. But then again, maybe that's why I found the place s'durned innarestin'.

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Tags

Jewish Community SupportBureaucracyMedical EthicsCanavan DiseaseFdaGene TherapyClinical TrialsMedical AdvocacyExperimental TreatmentLandsman Family

Places mentioned

United States
"there are over 500,000 clinical trials being conducted in all 50 states and 200 countries with the number increasing every year."

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Cairo Item ID 59139
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Retrieved 2025-08-13 05:30:30 UTC
Curated 2025-08-13 08:31:37 UTC