The video explores Vivi and her husband's journey of strength and faith as they navigate raising a family despite facing the loss of four children due to a genetic disorder.

The video explores Vivi Deren and her husband's journey of raising a family, including four children who did not survive due to a genetic disorder, highlighting their strength and positivity.

Emily Kramer-Golinkoff, a woman battling a rare form of cystic fibrosis, the Ashkenazi mutation, founded Emilys Entourage, a nonprofit aimed at funding research for nonsense mutations of CF that lack effective treatment options.